The Global State of the Genetic Counseling Profession

Mary Ann Abacan; Lamia Alsubaie; Kristine Barlow-Stewart; Beppy Caanen; Christophe Cordier; Eliza Courtney; Emeline Davoine; Janice Edwards; Niby J. Elackatt; Kate Gardiner; Yue Guan; Lian Hua Huang; Charlotta Ingvoldstad Malmgren; Sahil Kejriwal; Hyon J. Kim; Deborah Lambert; Paulina Araceli Lantigua-Cruz; Juliana M.H. Lee; Marianne Lodahl; Åshild Lunde; Shelley Macaulay; Ivan Macciocca; Sonia Margarit; Anna Middleton; Ramona Moldovan; Joanne Ngeow; Alexandra J. Obregon-Tito; Kelly E. Ormond; Milena Paneque; Karen Powell; Kunal Sanghavi; Diana Scotcher; Jenna Scott; Clara Serra Juhé; Shiri Shkedi-Rafid; Tina Marié Wessels; Sook Yee Yoon; Catherine Wicklund

doi:10.1038/s41431-018-0252-x

The Global State of the Genetic Counseling Profession

Mary Ann Abacan, Lamia Alsubaie, Kristine Barlow-Stewart, Beppy Caanen, Christophe Cordier, Eliza Courtney, Emeline Davoine, Janice Edwards, Niby J. Elackatt, Kate Gardiner, Yue Guan, Lian Hua Huang, Charlotta Ingvoldstad Malmgren, Sahil Kejriwal, Hyon J. Kim, Deborah Lambert, Paulina Araceli Lantigua-Cruz, Juliana M.H. Lee, Marianne Lodahl, Åshild LundeShelley Macaulay, Ivan Macciocca, Sonia Margarit, Anna Middleton, Ramona Moldovan, Joanne Ngeow, Alexandra J. Obregon-Tito, Kelly E. Ormond^*, Milena Paneque, Karen Powell, Kunal Sanghavi, Diana Scotcher, Jenna Scott, Clara Serra Juhé, Shiri Shkedi-Rafid, Tina Marié Wessels, Sook Yee Yoon, Catherine Wicklund, Kristijan Ramadan

^*Corresponding author for this work

Lee Kong Chian School of Medicine

Research output: Contribution to journal › Review article › peer-review

Abstract

The profession of genetic counseling (also called genetic counselling in many countries) began nearly 50 years ago in the United States, and has grown internationally in the past 30 years. While there have been many papers describing the profession of genetic counseling in individual countries or regions, data remains incomplete and has been published in diverse journals with limited access. As a result of the 2016 Transnational Alliance of Genetic Counseling (TAGC) conference in Barcelona, Spain, and the 2017 World Congress of Genetic Counselling in the UK, we endeavor to describe as fully as possible the global state of genetic counseling as a profession. We estimate that in 2018 there are nearly 7000 genetic counselors with the profession established or developing in no less than 28 countries.

Original language	English
Pages (from-to)	183-197
Number of pages	15
Journal	European Journal of Human Genetics
Volume	27
Issue number	2
DOIs	https://doi.org/10.1038/s41431-018-0252-x
Publication status	Published - Feb 1 2019

Bibliographical note

Publisher Copyright:
© 2018, The Author(s).

ASJC Scopus Subject Areas

Genetics
Genetics(clinical)

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10.1038/s41431-018-0252-x

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Abacan, M. A., Alsubaie, L., Barlow-Stewart, K., Caanen, B., Cordier, C., Courtney, E., Davoine, E., Edwards, J., Elackatt, N. J., Gardiner, K., Guan, Y., Huang, L. H., Malmgren, C. I., Kejriwal, S., Kim, H. J., Lambert, D., Lantigua-Cruz, P. A., Lee, J. M. H., Lodahl, M., ... Kristijan Ramadan (2019). The Global State of the Genetic Counseling Profession. European Journal of Human Genetics, 27(2), 183-197. https://doi.org/10.1038/s41431-018-0252-x

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title = "The Global State of the Genetic Counseling Profession",

abstract = "The profession of genetic counseling (also called genetic counselling in many countries) began nearly 50 years ago in the United States, and has grown internationally in the past 30 years. While there have been many papers describing the profession of genetic counseling in individual countries or regions, data remains incomplete and has been published in diverse journals with limited access. As a result of the 2016 Transnational Alliance of Genetic Counseling (TAGC) conference in Barcelona, Spain, and the 2017 World Congress of Genetic Counselling in the UK, we endeavor to describe as fully as possible the global state of genetic counseling as a profession. We estimate that in 2018 there are nearly 7000 genetic counselors with the profession established or developing in no less than 28 countries.",

author = "Abacan, {Mary Ann} and Lamia Alsubaie and Kristine Barlow-Stewart and Beppy Caanen and Christophe Cordier and Eliza Courtney and Emeline Davoine and Janice Edwards and Elackatt, {Niby J.} and Kate Gardiner and Yue Guan and Huang, {Lian Hua} and Malmgren, {Charlotta Ingvoldstad} and Sahil Kejriwal and Kim, {Hyon J.} and Deborah Lambert and Lantigua-Cruz, {Paulina Araceli} and Lee, {Juliana M.H.} and Marianne Lodahl and {\AA}shild Lunde and Shelley Macaulay and Ivan Macciocca and Sonia Margarit and Anna Middleton and Ramona Moldovan and Joanne Ngeow and Obregon-Tito, {Alexandra J.} and Ormond, {Kelly E.} and Milena Paneque and Karen Powell and Kunal Sanghavi and Diana Scotcher and Jenna Scott and Juh{\'e}, {Clara Serra} and Shiri Shkedi-Rafid and Wessels, {Tina Mari{\'e}} and Yoon, {Sook Yee} and Catherine Wicklund and {Kristijan Ramadan}",

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day = "1",

doi = "10.1038/s41431-018-0252-x",

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Abacan, MA, Alsubaie, L, Barlow-Stewart, K, Caanen, B, Cordier, C, Courtney, E, Davoine, E, Edwards, J, Elackatt, NJ, Gardiner, K, Guan, Y, Huang, LH, Malmgren, CI, Kejriwal, S, Kim, HJ, Lambert, D, Lantigua-Cruz, PA, Lee, JMH, Lodahl, M, Lunde, Å, Macaulay, S, Macciocca, I, Margarit, S, Middleton, A, Moldovan, R, Ngeow, J, Obregon-Tito, AJ, Ormond, KE, Paneque, M, Powell, K, Sanghavi, K, Scotcher, D, Scott, J, Juhé, CS, Shkedi-Rafid, S, Wessels, TM, Yoon, SY, Wicklund, C & Kristijan Ramadan 2019, 'The Global State of the Genetic Counseling Profession', European Journal of Human Genetics, vol. 27, no. 2, pp. 183-197. https://doi.org/10.1038/s41431-018-0252-x

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T1 - The Global State of the Genetic Counseling Profession

AU - Abacan, Mary Ann

AU - Alsubaie, Lamia

AU - Barlow-Stewart, Kristine

AU - Caanen, Beppy

AU - Cordier, Christophe

AU - Courtney, Eliza

AU - Davoine, Emeline

AU - Edwards, Janice

AU - Elackatt, Niby J.

AU - Gardiner, Kate

AU - Guan, Yue

AU - Huang, Lian Hua

AU - Malmgren, Charlotta Ingvoldstad

AU - Kejriwal, Sahil

AU - Kim, Hyon J.

AU - Lambert, Deborah

AU - Lantigua-Cruz, Paulina Araceli

AU - Lee, Juliana M.H.

AU - Lodahl, Marianne

AU - Lunde, Åshild

AU - Macaulay, Shelley

AU - Macciocca, Ivan

AU - Margarit, Sonia

AU - Middleton, Anna

AU - Moldovan, Ramona

AU - Ngeow, Joanne

AU - Obregon-Tito, Alexandra J.

AU - Ormond, Kelly E.

AU - Paneque, Milena

AU - Powell, Karen

AU - Sanghavi, Kunal

AU - Scotcher, Diana

AU - Scott, Jenna

AU - Juhé, Clara Serra

AU - Shkedi-Rafid, Shiri

AU - Wessels, Tina Marié

AU - Yoon, Sook Yee

AU - Wicklund, Catherine

AU - Kristijan Ramadan, null

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N2 - The profession of genetic counseling (also called genetic counselling in many countries) began nearly 50 years ago in the United States, and has grown internationally in the past 30 years. While there have been many papers describing the profession of genetic counseling in individual countries or regions, data remains incomplete and has been published in diverse journals with limited access. As a result of the 2016 Transnational Alliance of Genetic Counseling (TAGC) conference in Barcelona, Spain, and the 2017 World Congress of Genetic Counselling in the UK, we endeavor to describe as fully as possible the global state of genetic counseling as a profession. We estimate that in 2018 there are nearly 7000 genetic counselors with the profession established or developing in no less than 28 countries.

AB - The profession of genetic counseling (also called genetic counselling in many countries) began nearly 50 years ago in the United States, and has grown internationally in the past 30 years. While there have been many papers describing the profession of genetic counseling in individual countries or regions, data remains incomplete and has been published in diverse journals with limited access. As a result of the 2016 Transnational Alliance of Genetic Counseling (TAGC) conference in Barcelona, Spain, and the 2017 World Congress of Genetic Counselling in the UK, we endeavor to describe as fully as possible the global state of genetic counseling as a profession. We estimate that in 2018 there are nearly 7000 genetic counselors with the profession established or developing in no less than 28 countries.

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U2 - 10.1038/s41431-018-0252-x

DO - 10.1038/s41431-018-0252-x

M3 - Review article

SN - 1018-4813

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SP - 183

EP - 197

JO - European Journal of Human Genetics

JF - European Journal of Human Genetics

IS - 2

ER -

The Global State of the Genetic Counseling Profession

Abstract

Bibliographical note

ASJC Scopus Subject Areas

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